![\"\"](\"https:\/\/blogs.shu.edu\/magazine\/files\/2020\/04\/10b_A7AA618-A8BE-4FB3-B6F4-0A505AE25221_1_201_TomRetouch2-300x226.jpg\")
<\/a>\u201cYou just don\u2019t know what it\u2019s like unless you go through it,\u201d she says. \u201cThe body just betrays you. My father was lucky he was in the military and had coverage for it. Many people don\u2019t, and financial ruin can follow.\u201d<\/p>\nShe also provides a personal touch, reaching out by phone to those affected by ALS. \u201cThey can become a part of your family,\u201d says Dourney York, who serves as president of the nonprofit, based in Hillsborough, New Jersey.<\/p>\nDonna Dourney York \u201980<\/span>\nDourney York credits the University with helping her become more focused. Her tennis coach, Sue Patton \u2014 now a member of Seton Hall\u2019s Hall of Fame \u2014 helped show her how to channel her energies and become a leader. Dourney York became team captain in her senior year, a responsibility she really wanted.<\/p>\n
Yet her role today at HARK is one she does not want, because she hopes research will eradicate ALS and make her help obsolete. \u201cMy father was 79 when he died, but we helped raise money for someone who later passed away in his 30s,\u201d she says. \u201cThis disease is cruel. \u2026 You just want to make lives better for those who are dealing with it.\u201d<\/p>\n
Eric Butterman<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"Charlie Dourney \u201954 was an athlete. He pitched at Seton Hall. He gave tennis lessons. His body could do great things. Then, slowly, he started not to be able to do even simple things. <\/p>\n
Continue ReadingUntil There is a Cure<\/span><\/a><\/div>\n","protected":false},"author":4613,"featured_media":3437,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[259,1],"tags":[],"class_list":["post-3458","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-articles-2020-2024","category-uncategorized","entry"],"post_mailing_queue_ids":[],"_links":{"self":[{"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/posts\/3458","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/users\/4613"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/comments?post=3458"}],"version-history":[{"count":4,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/posts\/3458\/revisions"}],"predecessor-version":[{"id":3591,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/posts\/3458\/revisions\/3591"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/media\/3437"}],"wp:attachment":[{"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/media?parent=3458"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/categories?post=3458"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.shu.edu\/magazine\/wp-json\/wp\/v2\/tags?post=3458"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
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<\/a>\u201cYou just don\u2019t know what it\u2019s like unless you go through it,\u201d she says. \u201cThe body just betrays you. My father was lucky he was in the military and had coverage for it. Many people don\u2019t, and financial ruin can follow.\u201d<\/p>\n